Speakers

Joanna Davis MD

Dr. Joanna Davis, MD received her undergraduate degree from Barnard College of Columbia University. She attended the Albert Einstein College of Medicine in New York. Dr. Davis did her Pediatric internship and residency at the Children’s Hospital at Montefiore in the Bronx, and completed her general training at Jackson Memorial Medical Center in Miami. She completed a Fellowship in Pediatric Hematology/Oncology at Jackson Memorial Hospital, and joined the faculty of the University of Miami in 1984.

Dr. Davis started the Pediatric Hemophilia Treatment Center in 1987, at a time when there were only 6 patients enrolled. Today the UM HTC is the only federally-funded combined pediatric and adult HTC in South Florida, serving over 400 patients through the life spectrum who have been diagnosed with a variety of bleeding and clotting disorders.

Patient and provider education and outreach have been a cornerstone of the mission for the HTC. Nationally recognized patient programs, publications and research projects have been, and continue to be developed. The HTC sponsors several projects utilizing point-of-care ultrasound. Robust personalized physical therapy initiatives as well as psychosocial counseling are unique aspects of our commitment to comprehensive care.

Pete E.

Pete was diagnosed with hemophilia A at birth. Pete is a medical device sales representative and travels often for work. Pete did not talk about his hemophilia as a child because he felt limited by his diagnosis. But as he’s grown older, he feels more comfortable talking about his journey and knows that others can benefit from hearing what he has gone through.

Tom Hamm

Tom began working in the outdoors when he became an instructor at the Baltimore Chesapeake Bay Outward Bound School. Through his time at Outward Bound, he has become committed to experiential and expeditionary learning. Outward Bound taught Tom to believe that outdoor education can be a cornerstone to an influential and transformational learning experience for all students, regardless of their backgrounds. After a few years, Tom moved to the West Coast to become a coordinator of a university outdoor programin Chico, Ca. He has since joined GutMonkey with a drive for equity and inclusion around outdoor education and access to healthcare.

Jeffrey Kallberg PT

Jeffrey Kallberg is a physical therapist (PT) at the South Texas hemophilia treatment center in San Antonio. He is in his 26th year as a physical therapist and has been treating people who have hemophilia for about 20 years. His experience as a kid growing up with hemophilia informs his work with patients today

Ed Kuebler BA, MSW, LLC

Ed has worked in the bleeding disorders community for over 25 years. Ed graduated from the University of Houston, Masters of Social Work Graduate Program. Ed is the founder and director for Step Up Reach Out (SURO) International Leadership Program, and the Latin America (LatAm) SURO Program. He is co-founder, manager and faculty for the international AFFIRM Program (A Fellowship For Integrating Responsible Mentors). Ed has presented at the World Federation Hemophilia (WFH) from 2006 through 2020. He has presented at National Hemophilia Foundation (NHF) Annual Conferences for the last 20 years. He received the National Hemophilia Foundation’s Social Worker of the Year Award 2007. Ed is a past Chair of the World Federation of Hemophilia Psychosocial Committee. Ed is the co-founder and Board President for Global Blood Disorder Foundation Inc. (GBDF). He is a co-founder and Board member with the VWD Connect Foundation Inc.

Patrick James Lynch

Patrick James Lynch is a content producer, filmmaker, patient advocate, small business owner, and the founder of BloodStream Media. He has produced and/or been on-mic for more than 300 podcast episodes since starting his first show in 2011. Other producing credits include feature films Bombardier Blood (EP: Alex Borstein) and My Beautiful Stutter (EP: Paul Rudd); short films sometimes, i think about dying (Sundance Film Festival), Zero Issue, and Let’s Talk; web series Stop the Bleeding! and Baker’s Dozen (Amazon Prime); books Blood of the Paladin (graphic novel) and Seven

Summits (coffee table); event programs Teen Impact Awards, Breaking Through – Hemophilia: The Musical, and TheScienceFair.org. NORD Rare Impact Award (2020), NHF Meritorious Service Award (2014), HFA Health & Wellness Award recipient (2013), WFH World Congress Speaker (2016, 2018). Patrick has severe hemophilia A and dedicates his work in bleeding disorders to the memory of his late brother, Adam.

Ruth Mulvany, PT. DPT, MS

Dr. Ruth Mulvany, PT, DPT, MS, has served as the physical therapy consultant to the University of Tennessee Hemophilia Treatment Center and as associate professor in the Department of Physical Therapy. She has over 38 years of experience in management of Hemophilia and bleeding disorders and has received both the National Hemophilia Foundation Excellence in Physical Therapy Fellowship Award and The Physical Therapist of the Year Award. Her experience in hemophilia includes treatment, education and research with both adults and children. She has worked with the Haiti Episcopal Medical Mission Partnership, Centers for Disease Control, McMasters’ University Panel for Hemophilia Guidelines, FSRL/Haiti College for PT/OT Education, the Hemophilia Federation of America, the National Hemophilia Foundation, and Coalition for Hemophilia B, and MedScape. She has served as a member of the NHF Physical Therapy Working Group, as Co-Chairman of four NHF annual meetings and as the Regional Representative for the Southeast Region. She has presented on research and management of bleeding disorders nationally and internationally. Ruth enjoys living in North Carolina with her husband, family, grandchild and 2 dogs.

Disclosure: 6/16/2021
I currently consult with the University of Tennessee Hemophilia Treatment Center as a physical therapist.I have provided educational presentations and consultation for Hemophilia Federation of America, National Hemophilia Foundation, World Federation for Hemophilia, Aptevo Biotherapeutics, Bayer, Baxter, Novo Nordisk, and FSRL/Haiti. I do not advise or make recommendations regarding any specific pharmaceutical agent or agency other than the non-profit foundations, NHF, HFA, WFH and our own HTC. Ruth Mulvany, PT, DPT, MS 

Tim Ringgold MT-BC

Music has been my closest friend throughout my life and has especially been there for me in my darkest moments. It has never let me down, and it always accepted me just as I was. I am so blessed that I get the chance to share why music acts as such a powerful balm throughout our lives and particularly during times of stress and pain. During the first part of every week, I am “at play” in rehab centers in Southern California, helping teens and adults learn how to overcome depression, anxiety, trauma, and addiction. During the second half, I hop on a plane and teach patient groups how to use music as medicine. I was honored to give the first TEDx Talk on music therapy in 2012 and to have spent a decade serving my professional community as a regional board member of the American Music Therapy Association. I am married to the most amazing woman, Angelique. I have three wonderful kids: Ali, Bella (who beat us all back to heaven in 2010), and Julian.

Debbie de la Riva LPC

Debbie de la Riva has been active in the bleeding disorders community since her son was born with severe hemophilia on 1994. Over the years, she has had various roles within this special community including serving as the Executive Director of the Lone Star Chapter of the National Hemophilia Foundation (NHF). She has been a member of several NHF’s committees including the National Prevention Program, Steps for Living and served as a co-host of a recent Annual Meeting. Currently Debbie is collaborating with screening events of Believe Limited’s film Let’s Talk: Mental Health and contracting with the Hemophilia Federation of America to provide Mental Health First Aid classes and facilitate a three-part series on a cognitive behavioral approach to reduce anxiety and worry. Debbie is a contract licensed professional therapist with Better Help and a certified Mental Health First Aid Instructor. She is the founder of an organization called Mental Health Matters Too(MHMT). The mission of MHMT is toraise awareness and knowledge of mental health issues within the bleeding disorders community, normalizing the conversation about it and help community members find resources for mental health information, care and support. Debbie has a son with severe hemophilia A and lives in Houston, Texas.

Claudio Sandoval MD

Claudio Sandoval is currently the Director of Scientific and Medical Affairs- Hematology, Octapharma USA. Before this he was a pediatric hematologist-oncologist for 30 years. He attended New York Medical College and trained at Schneider Children’s Hospital in New York and St. Jude Children’s Research Hospital in Tennessee.

Judy Simms-Cendan MD

Dr. Judy Simms-Cendan is the new Division Director of Pediatric Adolescent Gynecologist at the University of Miami Miller School of Medicine OBGYN department. Dr. Simms-Cendangraduated from the University of Miami with her Bachelor of Science, and from the University of Florida College of Medicinewith her MD degree. She completed her residency training in OBGYNat the University of Florida in 1995, then served on the faculty and started a Pediatric Adolescent Gynecology weekly clinic. She joinedthe founding faculty at the UCF College of Medicinein 2010andopened the firstpracticein Florida fully dedicated toPediatric Adolescent Gynecology patients in2010 at Winnie PalmerHospitalin Orlandoand founded a combined hematology/gynecology for adolescent girls with heavy menses and bleeding disorders in 2017. In July 2021 she joined the University of Miami faculty to develop dedicated Pediatric Adolescent Gynecology practices and is excited to be working with the faculty of the Hemophilia Treatment Center at UM. Dr. Simms-Cendan enjoys teaching her patients and their families, medical students, pediatrics and obgyn residents in her clinic. She has written national guidelines for care of adolescents with heavy menses and bleeding disorders (ACOG CO 785, 2019), and international advocacy statements to call attention to the need forimproved care for adolescents girls with menstrual disorders.

Pat Torrey

Pat unwittingly began his career traversing mountains and rivers, working at camps and in therapeutic wilderness programs across the country. Along the way he discovered the power that shared experiences in awe-inspiring environments can have on individuals’ lives, and he got hooked.Pat’s work as a challenge course facilitator, builder, and adventure education trainer has focused on the professional development of youth educators and the facilitation of personal growth within organizations. Pat founded GutMonkey in 2005 and hasn’t looked back. His passion for quality professional training has inspired him to continue traversing mountains and rivers (more often from a plane these days) to deliver engaging and animated keynote speeches and workshop presentations at regional, national, and international events.He has designed and implemented experiential and adventure education trainings and expeditions for professionals and staff teams nationwide. Pat’s diverse interests include free-diving, dance-floor jiving, and playing well with others, all of which can also be seen as high-quality programs that contribute to individuals’ realization of their boundless potential.

Christopher Walsh MD, PhD

Christopher E. Walsh, MD, PhD, is Associate Professor and Director of the Hemophilia Program in the Division of Hematology and Medical Oncology at the Icahn School of Medicine at Mount Sinai in New York City. He joined Mount Sinai in 2002. He received his PhD in Biochemistry from Wake Forest School of Medicine and his MD from Tulane University School of Medicine. He then completed an internship and a residency in Internal Medicine at North Carolina Memorial Hospital in Chapel Hill and a residency in Internal Medicine and a fellowship in Hematology at the National Institutes of Health in Bethesda, Maryland. Dr. Walsh is board-certified in Hematology and Internal Medicine.

Dr Walsh is the Regional Director of ATHN funded Hemophilia Treatment Centers in New England. He sits on the boards of National Hemophilia Foundation Medical and Scientific Advisory Board (MASAC), American Thrombosis and Hemostasis Network (ATHN), Hemophilia Federation of America (HFA) and Hemophilia Association of New York (HANY). Dr. Walsh’s clinical research centers on HCV eradication in bleeding disorders patients, prophylaxis and prevention of bleeding with non-factor therapy and treatment of the aging adult population with bleeding disorders. His current basic research focuses on gene therapy of blood diseases particularly von Willebrand disease and very rare bleeding disorders. He pioneered the research into Adeno-Associated Virus (AAV) and its first use as a gene therapy vector. Dr. Walsh’s early work culminated in the first clinical trial in for gene therapy of patients with Fanconi Anemia Group C and Group A. His research group is also actively developing gene therapies for hemophilia A and B, von Willebrand disease, cardiovascular disease, cancer and other disorders. He has over 100 peer reviewed publications.

Cristie Vidal-Strub APRN, MSN, MEd, CHC

Cristie Vidal-Strub is a board-certified nurse practitioner and has worked in family practice as well as emergency medicine. For the past 4 1/2 years she has worked as a hemophilia clinical nurse educator with Genentech. She has volunteered as a nurse at Camp Boggy Creek for the past 20 years, and has always been passionate about working with the bleeding disorders community.

Tung Wynn MD

Tung Wynn is the Director of the University of Florida Hemophilia and Hemostasis Treatment Center for the previous 9 years. He has provided care for patients all throughout Florida since 2003 after he completed fellowship training at Nationwide Children’s Hospital in Columbus, OH. He currently lives in Gainesville with his wife and 3 sons.

Michael Zolotnisky PT

Michael Zolotnitsky, Orthopedic PT works as an Orthopedic Physical Therapist in Old Bridge, NJ who specializes in patient’s after surgery including young athletes and older individuals, after concussions, neurological disorders such as MS and Parkinson’s. In addition, he has a strong interest in helping individuals in the bleeding disorder communities. He was diagnosed with severe Hemophilia A; however, has not let this come in the way of being physically active with sports, running three half marathons, and weight training 5-6x/week. He currently is a volunteer for fundraisers as well as the featured speaker for the Hemophilia Association of NJ, recently traveled to Indiana to speak to the group of Dads with sons of Hemophilia and will be presenting a talk at the next HFA Symposium regarding aquatic therapy for the patient with a bleeding disorder. His eventual goal is to conduct research regarding safe exercises in patients with bleeding disorder to encourage all to stay physically active in order to prevent injury and live a normal lifestyle.